I can tell you have put an incredible effort in your review and I’m glad you were able to get it out so quickly. I wish you the absolute best and pray for your health.Feeling okay right now.
Latest scans show the tumors multiplying and increasing in size.
The good Lord want me to be here on earth a while longer. The Drs cannot say why things have gone as slow as they have and why I am not doing a lot worse.
I decided in Sept of 2016 to not do any more surgeries, clinical trials, or experimental treatments...though the docs want me to.
I have seen several friends who ahve this disease (Sacral Chordoma) try them and spend months and onths being miserable, feeling like tey were dieing and in much worse pain...and then dieing a few months later anyway.
I decided since I was not feeling too horrible, to let myself feel as good as I could for as long as I could. At the time the Drs though I had 3-4 months left and that was 18 months ago.
So I count my blessings, thank God for the time I have. Spend as much tiome with family as I can, do work for my church...still work on some models and check SD and other sites.
I am grateful for those tender mercies.
And I am grateful from my friends here and I thank you Jura for asking.
God's speed to you and yors my friend!
...and I thank my Father in HEaven and His Son JEsus christ every day.